Thursday, June 25, 2009

Another road block

I finally got the social worker to answer my call.The hospital I was trying to have evaluate Craig's meds say he's not in crisis, so no help.She also says there are no psychiatrists that will take his medical card except the one I don't want to see him anymore.

Wednesday, I am excited.I am going to a support group meeting for the first time. I arrive early, as usual.I meet the gentleman running the group, and several others also arrive.We each tell about our loved ones and our situation, and tell what we need from this meeting.

The others are caregivers for a family member at home, so their situation is different. When I tell my story, I say I am looking for help in getting my husband better care.

I guess I spend a lot of time researching and talking to others, because I seem to know things that are still questions for the others.

The gentleman running the meeting gives me his card and some literature, and suggests that I call the local chapter for advise, and perhaps consider the idea of stating a support group for
Early Onset families.

I tell him I would be glad to help others that find themselves in this unusual circumstance, but that I think that it will be the new wave of AD patients soon.

Thursday, I get a call at work. The speech therapist is calling.I am confused. She tells me that Craig is having difficulty chewing his food, and they are going to ask the doctor to put him on a soft diet. Another step........

I stop on the way from work and buy soft foods for him. He has bruises and nicks on his left hand and wrist again, but laughs when I ask if he hurt himself. He laughs a lot these days.
I think he laughs when he doesn't understand.

The aide brings in his regula dinner, but he picks and insists on getting back to his unending walking. I kiss him goodbye, and he tells me he really likes me.........

I need to find time to call the local chapter soon.

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