Monday, November 2, 2009

Tornadoes have nothing on this

I know it has been a while since I last posted, but life has been one thing after the other lately.

Craig's seizures have gotten worse, and he spent 5 days in the hospital, 2 of which were in a coma.Then fine then unable to swallow, then catatonic.
 Finally got him released, and he has deteriorated to the point of looking into hospice, and telling the staff no to a feeding tube.
He cannot chew, and is on a puree diet, cannot drink thru a straw,does not move or speak.
They have adjusted his meds so many times in the past month, I can hardly keep up.

His visit to the neuro started the whirlwind when he removed all but his xyprexa and depakote.
The AD meds were restarted after his hospital trip, and his depakote was changed to time release, because his levels come up too low all the time.

It is so painful to see him in this condition, I can hardly stand to see him at all. I know he would be devastated by living in this shape, so the boys and I have agreed to no feeding tubes, no extra treatments.