Saturday, September 5, 2009

Whirlwind week

Called the ombudsperson and see if she's heard from NH, nothing.She calls to set up meeting,
Friday at 10 am.

Suddenly magic happens, glasses appear, new NH calls, doctor calls!

Speak to doctor,asked for EEG results, told will tell you, but you won't understand.

Please don't assume! Says results are typical of elderly brain, but nothing to indicate the cause of the seizures.
I tell him I think meds may be cause of seizures, he says may just be progression of AD.

Guess no changes here.

Craig has not addressed me by name since the seizure, lays in bed the whole visit. Give him candy, unwraps it throws candy away and tries to eat the foil wrapper. Then yells at me for taking foil away.
Call from NH craig fell again, told them may be due to new bifocals, never had them before.
SW calls to say potential NH came to evaluate Craig for the AD unit.Receive a call next day
(thank her for at least calling). She says he doesn't qualify because cannot perform any self
care functions.

Now I get on my high horse. Tell her that I want him out of the current facility, and explain goings on at current facility.Also explain thoughts about overmedication. She says will speak to administrator about possible admission to regular unoit for meds eval and possible transfer after
seeing if that corrects some of the problems.

She asks me to come for a tour. Leave work early, arrive at new NH. Meet admissions nurse, says SW is in meeting. Given tour of new facilty.She asks what I am looking for, I say I just want someone to care about him.

Asked and said yes to placement on waiting list.

Friday has arrived, I take my sister(who is more vocal than me) and meet ombudsperson at
NH with printed list. Ask for elder law atty referral, told they do not do referrals.

This meeting has everyone who's anyone, pass out printed lists. I am slow at first, then kind of get wound up into it. The head administrator seems shocked at the problems listed.

NOW everyone wants to help. tell them I placed Craig on list for new NH due to AD unit.
Ask to have Craig removed from Aricept placed on Exelon.Say they will converse with doctor.
Try to fib a few times, thank God I brought sister to back up .Ombudsperson takes furious notes.Offered and accepted new room for Craig by outside access with view.Set appt with ombudsperson to review in 1 month.Set appt for review with NH staff every 2 weeks.

Seems like too little too late to me. New room directly accross from nurses station. Guess they will be watching him closer now.

Will return after room move complete.

I have made it plain to all that although they may be correcting my concerns, I worry what
happens with patients who have no one to oversee their care. Everyone is happy-happy and shake their heads in agreement.

We shall see if this has made any impact in the coming days.

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